The Murray-Wood Foundation serves as support, education and as an advocate for patients and caregivers dealing with orphan diseases not limited to but including Ehlers-Danlos Syndrome, Arnold Chiari Malformation, Tethered Cord Syndrome, Syringomyelia and Mastocytosis/Mast Cell Activation Disorder as well as providing charitable giving to other non-profit organizations for research regarding said diseases.
Board Members
Patricia Wood Murray
President, Chairman,
Executive Director, Treasurer
Rita Barlow
Co-Chairman
Kolleen Barlow
Secretary
Jimmy Greenspoon
Media and Public Relations
Lisa Mathis
Education Chairman
Tour America Concerts
Coming to a City Near You
Check Here For Schedule
Producer: John Anthony
What Is:
Ehlers-Danlos Syndrome?
Ehlers-Danlos National Foundation
Ehlers-Danlos Network
Mastocytosis?
The Mastocytosis Society
POTS?
Dysautonomia Network
Arnold Chiari Malformation?
Chiari and Syringomyelia Foundation
Latex Allergies
American Latex Allergy Association
Look To The Future
by Jimmy Greenspoon
from Three Dog Night
May is
Ehlers-Danlos Syndrome Awareness Month